Build a platform for patients to sound out their experience.
Work in progressInvolve patients in advisory boards on topics to improve our understanding of their disease and treatment.
Work in progressProvide sound scientific and relevant information in an understandable format and lay-person language.
Work in progress
experts by experience co-creation sessions
Work in progress
To actively reach out and obtain feedback on patient's and caregivers' experiences
Work in progressTo have at least 1-2 contacts with patients each year
Work in progress
1) Enagage sites /patients to better understand the patient journey with disease 2) Listen and not assume as we set up opeartional plans for execution of studies 3) Visit sites, ask questions and listen
Work in progress
I am committed to not only listening to our patients but also advocate for them.
Work in progressI am committed to communicating to our patients - especially in providing them the results of their participation.
Work in progress