Founder/President
Making sure there’s a two-way communication loop, adding lay versions in as many languages as we can publish.
Work in progress
Programs Director
I commit to practicing empathy and listening to new points of views and ideas without prejudice.
Work in progress
I commit to helping patients have a more active voice within my organization through co-creating products and solutions.
Work in progress
EUPATI fellow & patient expert, Switzerland
I aim to listen to all parties involved in medicines development: including patients, pharma, and academia. We need to listen to one another, paying close attention one another's needs and ambitions in order to achieve goals that are beneficial to all of us and to society at large.
Work in progress
EUPATI fellow & patient expert, Switzerland
Co-creation is where it is at. In the past, the lion share of investment in R&D was wasted (85%: redundant, inconclusive, duplicated or unpublished) and extraordinary numbers of trials failed or were incomplete (97%). What was missing? Patient collaboration, for starters. By co-creating, we can identify what patients actually need, value and want. Let's help meet public health needs by sharing our expertise.
Work in progress
EUPATI fellow & patient expert, Switzerland
Consulting with patients is something relatively new and radical. To turn it into something fruitful, creative, positive and productive, we will all need to communicate clearly and considerately.
Work in progress
Create effectives ways of communication and advocacy
Work in progress
Patient Engagement & Communication Officer
As a representative of EUPATI Luxembourg, our objective is to work in close collaboration with patients' organisations.
Work in progress
Patient Engagement & Communication Officer
As a scientific collaborator at the Department of Population Health in the Luxembourg Institute of Health, we regularly sensibilze researchers on the importance of patient-centric research. i tried to share with them good practices of the other countries.
Work in progress