Founder/President
Making sure there’s a two-way communication loop, adding lay versions in as many languages as we can publish.
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Programs Director
I commit to practicing empathy and listening to new points of views and ideas without prejudice.
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I commit to helping patients have a more active voice within my organization through co-creating products and solutions.
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EUPATI fellow & patient expert, Switzerland
I aim to listen to all parties involved in medicines development: including patients, pharma, and academia. We need to listen to one another, paying close attention one another's needs and ambitions in order to achieve goals that are beneficial to all of us and to society at large.
Travaux en cours
EUPATI fellow & patient expert, Switzerland
Co-creation is where it is at. In the past, the lion share of investment in R&D was wasted (85%: redundant, inconclusive, duplicated or unpublished) and extraordinary numbers of trials failed or were incomplete (97%). What was missing? Patient collaboration, for starters. By co-creating, we can identify what patients actually need, value and want. Let's help meet public health needs by sharing our expertise.
Travaux en cours
EUPATI fellow & patient expert, Switzerland
Consulting with patients is something relatively new and radical. To turn it into something fruitful, creative, positive and productive, we will all need to communicate clearly and considerately.
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Create effectives ways of communication and advocacy
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Patient Engagement & Communication Officer
As a representative of EUPATI Luxembourg, our objective is to work in close collaboration with patients' organisations.
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Patient Engagement & Communication Officer
As a scientific collaborator at the Department of Population Health in the Luxembourg Institute of Health, we regularly sensibilze researchers on the importance of patient-centric research. i tried to share with them good practices of the other countries.
Travaux en cours