Patient Engagement & Communication Officer
From 1997 until 2007, I worked for 10 years at Alzheimer Europe, a non-governmental organisation aiming to provide a voice to people with dementia and their carers. Alzheimer Europe is an umbrella organisation having around 30 member organisations all around Europe. As the Communications officer of this NGO, I was used to work in close collaboration with our member organisations and encourage them to become involved organisations. I also organised the annual conferences and, at the beginning, all invited speakers were only made up of international eminent experts. In 1999, we decided to invite a patient during the plenary session. It was the most interesting session I attended. Since this day, I am convinced of the importance of patient’s voice. Tis experience had a real impact on the way we conducted the projects after because the priorities of patients were included. Communicate with all stakeholders is my professional way of working!
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Through NPO Malta, I am taking part on a national Radio programme educating patients and raising awareness of their rights as per the Patents Charter. Here I am giving the telephone numbers where the year can fell free to communicate with us and ask for any assistance where they need it and we work together with them to solve their problems which they may have.
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Promote and faciliate early engagement with patient in Study protocol design; get feedback from patient on "easy-to-understand" ICF and Lay summary
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Diseño de Estudios y análisis estadísticos
All purpose of studies send by patients we received, we will be taking account and have free services of methodological assessment.
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I will listen to patients
作業が進行中I will create content together with patients
作業が進行中I will help create tools to communicate with patients
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I commit to listen to the patients and understand their feelings and expectations
作業が進行中I commit to communicate openly, frankly and constructively with the patients
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