I commit to continue communicating about patient/public and researcher engagement (PPaRE) to diverse audiences.
作業が進行中Patient research advocate for Parkinsons UK
Play an active role in the Parkinsons UK Research Support Network, East of England Research Interest Group and PPI activities
作業が進行中Patient research advocate for Parkinsons UK
Continue to be an ambassador for research and patient engagement, through Branch meetings, presentations, tweets and website posts.
作業が進行中Head, Product Development Patient Insights
I commit to influencing development teams to see the value of including patients and caregivers in their development planning, and to holding them acocuntable for actively incorporating patient views and preferences.
完了I commit to continuously engage in discussions with all stakeholders to help shift the mindset towards true patient-centricity.
作業が進行中Patient and Patient Advocate
As a patient and patient advocate, member of international patient groups, and with access to congresses and events where we can access information of interest on treatments, studies, diseases, I commit myself to share all useful information with the network of patients with whom I can be related, using plain and clear language, or facilitating direct access to the original papers.
完了I’ll interview 3 patients in the next 6 months, to better understand what medical representatives could do immediately to improve their engagement in medicine development lifecycle.
作業が進行中I’ll promote 3 successful stories of patient engagement done right in order to inspire others to participate.
作業が進行中Patient Engagement Consultant
I will consult with our contributors to capture their experiences and learn what they want our Patient and Public Involvement programme to look like moving forward.
作業が進行中