We will provide patients with the tools to create a research engine that is patient-centered and create the largest study of Lyme disease ever conducted with our patient registry, MyLymeData.
Work in progressWe will put patients at the center and hold and communicate their values to make change. We will do this by empowering our community and building an infrastructure that will maintain this patient-centered power.
Work in progress
Will take advantage to listen to patient insights at every opportunity.
Work in progressWill use these insights to fine tune and change our processes and approaches
Work in progressFace to Face, through labels and communication channels will address these insights with a concrete plan
Work in progress
Make sure local people are in the loop
Work in progress
Listen to the needs of patients, and use this to guide my day-to-day interactions to ensure that these needs are being met.
Work in progress
Advocate for patients
Work in progressTake time to discuss patients concerns ,and then act on them.
Work in progress