We will provide patients with the tools to create a research engine that is patient-centered and create the largest study of Lyme disease ever conducted with our patient registry, MyLymeData.
Travaux en coursWe will put patients at the center and hold and communicate their values to make change. We will do this by empowering our community and building an infrastructure that will maintain this patient-centered power.
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Will take advantage to listen to patient insights at every opportunity.
Travaux en coursWill use these insights to fine tune and change our processes and approaches
Travaux en coursFace to Face, through labels and communication channels will address these insights with a concrete plan
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Make sure local people are in the loop
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Listen to the needs of patients, and use this to guide my day-to-day interactions to ensure that these needs are being met.
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Advocate for patients
Travaux en coursTake time to discuss patients concerns ,and then act on them.
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